This guide will help you get ready for your mandibulectomy surgery at Memorial Sloan Kettering (MSK). It will also help you understand what to expect during your recovery.
Read through this guide at least once before your surgery and use it as a reference in the days leading up to your surgery.
Bring this guide with you every time you come to MSK, including the day of your surgery. You and your healthcare team will refer to it throughout your care.Back to top
About Your Surgery
Mandibulectomy and free-flap reconstruction
A mandibulectomy is a surgery to remove all or part of your jaw (mandible). You may have a mandibulectomy if you have a tumor involving your jaw.
Your jaw may be rebuilt using bone from another part of your body (the donor site). The bone may be taken from your fibula, which is the smaller of the 2 bones in your lower leg. An artery, vein, and soft tissue will also be removed with the bone. This is called a fibula free flap (see Figure 1).
The leg is the donor site that’s most often used for jaw reconstructions. If your jaw is being rebuilt using bone from a different donor site or if bone won’t be used in your reconstruction, your plastic surgeon will discuss this with you.
You may also need a skin graft to cover your donor site. A skin graft is made by taking the top layer of skin from one part of your body and moving it to the surgical site that needs to be covered. If a skin graft is needed, it will be removed from another area, usually the buttock or thigh. Your plastic surgeon will talk with you about the plan for your surgery.
Before your surgery
You’ll meet with your head and neck surgeon, your plastic surgeon, and your dentist. They’ll make sure it’s safe for you to have surgery. They’ll also take computed tomography (CT) scan(s) and x-rays to assess the amount of tumor in your jaw. These will be used to make a model of your new jaw before surgery.
You may also have:
- Photographs taken of your face that will be used during the reconstruction.
- Scans that use special dye (angiograms), such as magnetic resonance (MR) or CT, of your donor site to evaluate the blood vessels in your donor site.
During your surgery
Your surgery will be done by 3 surgical teams: a head and neck team, a plastics team, and dental team.
Your head and neck surgeon will remove the tumor from your jaw and the soft tissue around it. At the same time, your plastic surgeon will remove the bone, tissue, and skin from your donor site. This will take 3 to 4 hours. Your head and neck surgeon will send the tumor and surrounding tissue to the Pathology Department for testing. Once your head and neck surgeon has completed their part of the surgery, the reconstruction can be done.
Your plastic surgeon will transfer the tissue from your donor site to reconstruct your jaw. The bone from your donor site will be shaped to match, as closely as possible, the piece of your jaw that was removed. Once this is complete, your plastic surgeon will attach the artery and vein from the donor site to an artery and vein in your head and neck area. This is done under a microscope. They’ll fix the new jaw bone in place with plates and screws and cover it with the soft tissue. Your plastic surgeon will then place stitches in your face and neck to connect them to the soft tissue. The reconstructive part of the surgery usually takes 6 to 8 hours.
During your reconstruction, your dentist may place temporary arch bars and rubber bands in your mouth (see Figure 2). These will keep your teeth and jaw correctly aligned. Your dentist will remove the rubber bands 5 to 7 days after your surgery and the arch bars 14 days after your surgery.
Mandibulectomy can cause swelling and difficulty breathing. To prevent this, a tracheostomy tube will be inserted into your trachea (windpipe) through an incision (surgical cut) in your neck, while you’re still asleep. This will keep your airway open and make it easier for you to breathe.
Your surgery will also cause facial swelling, which will affect the way you eat, drink, and speak. This will slowly decrease as the area heals over several months. To help you get your nutrition, a nasogastric (NG) tube will be inserted during surgery. It goes through your nose and into your stomach. The NG tube will give you nutrients for the first 1 to 2 weeks while your jaw is healing. After your jaw has healed, the NG tube will be removed and you’ll gradually start eating and drinking again. Your doctor will decide when it’s safe to do so. How long this takes varies from person to person. It also depends on the extent of your surgery. Tell your healthcare team if you have any questions or concerns.Back to top
Before Your Surgery
The information in this section will help you get ready for your surgery. Read through this section when your surgery is scheduled and refer to it as your surgery date gets closer. It has important information about what you need to do before your surgery.
Write down your questions and be sure to ask your healthcare provider.
Getting ready for your surgery
You and your healthcare team will work together to get ready for your surgery. Help us keep you safe during your surgery by telling us if any of the following statements apply to you, even if you aren’t sure.
- I take a blood thinner. Some examples are aspirin, heparin, warfarin (Jantoven®, Coumadin®), clopidogrel (Plavix®), enoxaparin (Lovenox®), dabigatran (Pradaxa®), apixaban (Eliquis®), and rivaroxaban (Xarelto®). There are others, so be sure your healthcare provider knows all the medications you’re taking.
- I take prescription medications (medications prescribed by a healthcare provider), including patches and creams.
- I take over-the-counter medications (medications I buy without a prescription), including patches and creams.
- I take dietary supplements, such as herbs, vitamins, minerals, or natural or home remedies.
- I have a pacemaker, automatic implantable cardioverter-defibrillator (AICD), or other heart device.
- I have sleep apnea.
- I have had a problem with anesthesia (medication to make you sleep during surgery) in the past.
- I’m allergic to certain medication(s) or materials, including latex.
- I’m not willing to receive a blood transfusion.
- I drink alcohol.
- I smoke.
- I use recreational drugs.
About drinking alcohol
The amount of alcohol you drink can affect you during and after your surgery. It’s important to talk with your healthcare providers about how much alcohol you drink. This will help us plan your care.
- If you stop drinking alcohol suddenly, it can cause seizures, delirium, and death. If we know you’re at risk for these complications, we can prescribe medications to help keep them from happening.
- If you drink alcohol regularly, you may be at risk for other complications during and after your surgery. These include bleeding, infections, heart problems, and a longer hospital stay.
Here are things you can do before your surgery to keep from having problems:
- Be honest with your healthcare providers about how much alcohol you drink.
- Try to stop drinking alcohol once your surgery is planned. If you develop a headache, nausea (feeling like you’re going to throw up), increased anxiety, or can’t sleep after you stop drinking, tell your healthcare provider right away. These are early signs of alcohol withdrawal and can be treated.
- Tell your healthcare provider if you can’t stop drinking.
- Ask your healthcare provider questions about drinking and surgery. As always, all of your medical information will be kept confidential.
If you smoke, you can have breathing problems when you have surgery. Stopping even for a few days before surgery can help. If you smoke, your healthcare provider will refer you to our Tobacco Treatment Program. You can also reach the program by calling 212-610-0507.
About sleep apnea
Sleep apnea is a common breathing disorder that causes you to stop breathing for short periods of time while sleeping. The most common type is obstructive sleep apnea (OSA). With OSA, your airway becomes completely blocked during sleep. OSA can cause serious problems during and after surgery.
Please tell us if you have sleep apnea or if you think you might have it. If you use a breathing device (such as a CPAP device) for sleep apnea, bring it with you the day of your surgery.
Within 30 days of your surgery
Presurgical Testing (PST)
Before your surgery, you’ll have an appointment for presurgical testing (PST). The date, time, and location of your PST appointment will be printed on the appointment reminder from your surgeon’s office.
You can eat and take your usual medications the day of your PST appointment.
During your appointment, you’ll meet with a nurse practitioner (NP) who works closely with anesthesiology staff (specialized healthcare providers who will give you anesthesia during your surgery). Your NP will review your medical and surgical history with you. You may have tests, such as an electrocardiogram (EKG) to check your heart rhythm, a chest x-ray, blood tests, and any other tests needed to plan your care. Your NP may also recommend that you see other healthcare providers.
Your NP will talk with you about which medications you should take the morning of your surgery.
It’s very helpful to bring the following things to your PST appointment:
- A list of all the medications you’re taking, including prescription and over-the-counter medications, patches, and creams.
- Results of any tests done outside of MSK, such as a cardiac stress test, echocardiogram, or carotid doppler study.
- The name(s) and telephone number(s) of your healthcare provider(s).
Identify your caregiver
Your caregiver plays an important role in your care. Before your surgery, you and your caregiver will learn about your surgery from your healthcare providers. After your surgery, your caregiver will take you home when you’re discharged from the hospital. They’ll also help you care for yourself at home.
Complete a Health Care Proxy form
If you haven’t already completed a Health Care Proxy form, we recommend you complete one now. If you have completed one already, or if you have any other advance directives, bring them to your next appointment.
A health care proxy is a legal document that identifies the person who will speak for you if you can’t communicate for yourself. The person you identify is called your health care agent.
Talk with your healthcare provider if you’re interested in completing a health care proxy. You can also read the resources Advance Care Planning and How to Be a Health Care Agent for information about health care proxies, other advance directives, and being a health care agent.
Try to do aerobic exercise every day. Aerobic exercise is any exercise that makes your heart beat faster, such as walking, swimming, or biking. If it’s cold outside, use stairs in your home or go to a mall or shopping center. Exercising will help your body get into its best condition for your surgery and make your recovery faster and easier.
Follow a healthy diet
Follow a well-balanced, healthy diet before your surgery. If you need help with your diet, talk with your healthcare provider about meeting with a clinical dietitian nutritionist.
Buy a 4% chlorhexidine gluconate (CHG) solution antiseptic skin cleanser (such as Hibiclens®)
4% CHG solution is a skin cleanser that kills germs for 24 hours after you use it. Showering with it before your surgery will help lower your risk of infection after surgery. You can buy a 4% CHG solution antiseptic skin cleanser at your local pharmacy without a prescription.
7 days before your surgery
Follow your healthcare provider’s instructions for taking aspirin
If you take aspirin or a medication that contains aspirin, you may need to change your dose or stop taking it 7 days before your surgery. Aspirin can cause bleeding.
Follow your healthcare provider’s instructions. Don’t stop taking aspirin unless they tell you to. For more information, read the resource Common Medications Containing Aspirin, Other Nonsteroidal Anti-inflammatory Drugs (NSAIDs), or Vitamin E.
Stop taking vitamin E, multivitamins, herbal remedies, and other dietary supplements
Stop taking vitamin E, multivitamins, herbal remedies, and other dietary supplements 7 days before your surgery. These things can cause bleeding. For more information, read the resource Herbal Remedies and Cancer Treatment.
2 days before your surgery
Stop taking nonsteroidal anti-inflammatory drugs (NSAIDs)
Stop taking NSAIDs, such as ibuprofen (Advil®, Motrin®) and naproxen (Aleve®), 2 days before your surgery. These medications can cause bleeding. For more information, read the resource Common Medications Containing Aspirin, Other Nonsteroidal Anti-inflammatory Drugs (NSAIDs), or Vitamin E.
1 day before your surgery
Note the time of your surgery
A staff member from the Admitting Office will call you after 2:00 pm the day before your surgery. If your surgery is scheduled for a Monday, they’ll call you on the Friday before. If you don’t get a call by 7:00 pm, call 212-639-5014.
The staff member will tell you what time to arrive at the hospital for your surgery. They’ll also remind you where to go.
This will be the following location:
Presurgical Center (PSC) on the 6th floor
1275 York Avenue (between East 67th and East 68th Streets)
New York, NY 10065
B elevator to 6th Floor
Shower with a 4% CHG solution antiseptic skin cleanser (such as Hibiclens)
The night before your surgery, shower using a 4% CHG solution antiseptic skin cleanser.
- Use your normal shampoo to wash your hair. Rinse your head well.
- Use your normal soap to wash your face and genital area. Rinse your body well with warm water.
- Open the 4% CHG solution bottle. Pour some into your hand or a clean washcloth.
- Move away from the shower stream. Rub the 4% CHG solution gently over your body from your neck to your feet. Don’t put it on your face or genital area.
- Move back into the shower stream to rinse off the 4% CHG solution. Use warm water.
- Dry yourself off with a clean towel after your shower.
- Don’t put on any lotion, cream, deodorant, makeup, powder, perfume, or cologne after your shower.
Go to bed early and get a full night’s sleep.
Instructions for eating before your surgery
Do not eat anything after midnight the night before your surgery. This includes hard candy and gum.
The morning of your surgery
Instructions for drinking before your surgery
You can drink a total of 12 ounces of water between midnight and 2 hours before your scheduled arrival time. Do not drink anything else.
Do not drink anything starting 2 hours before your scheduled arrival time. This includes water.
Take your medications as instructed
If your healthcare provider told you to take certain medications the morning of your surgery, take only those medications with a sip of water. Depending on what medications you take, this may be all, some, or none of your usual morning medications.
Shower with a 4% CHG solution antiseptic skin cleanser (such as Hibiclens)
Shower with a 4% CHG solution antiseptic skin cleanser before you leave for the hospital. Use it the same way you did the night before.
Don’t put on any lotion, cream, deodorant, makeup, powder, perfume, or cologne after your shower.
Things to remember
- Wear something comfortable and loose-fitting.
- If you wear contact lenses, wear your glasses instead. Wearing contact lenses during surgery can damage your eyes.
- Don’t wear any metal objects. Remove all jewelry, including body piercings. The equipment used during your surgery can cause burns if it touches metal.
- Don’t put on any lotion, cream, deodorant, makeup, powder, perfume, or cologne.
- Leave valuable items (such as credit cards, jewelry, and your checkbook) at home.
- If you’re menstruating (have your monthly period), use a sanitary pad, not a tampon. You’ll get disposable underwear, as well as a pad if needed.
What to bring
- Your breathing device for sleep apnea (such as your CPAP device), if you have one.
- Your Health Care Proxy form and other advance directives, if you completed them.
- Your cell phone and charger.
- Only the money you may want for small purchases (such as a newspaper).
- A case for your personal items (such as eyeglasses, hearing aid(s), dentures, prosthetic device(s), wig, and religious articles), if you have one.
- This guide. Your healthcare team will use it to teach you how to care for yourself after surgery.
Where to park
MSK’s parking garage is located on East 66th Street between York and First Avenues. If you have questions about prices, call 212-639-2338.
To reach the garage, turn onto East 66th Street from York Avenue. The garage is located about a quarter of a block in from York Avenue, on the right-hand (north) side of the street. There’s a tunnel that you can walk through that connects the garage to the hospital.
There are also other garages located on East 69th Street between First and Second Avenues, East 67th Street between York and First Avenues, and East 65th Street between First and Second Avenues.
Once you’re in the hospital
When you get to the hospital, take the B elevator to the 6th floor. Check in at the desk in the PSC waiting room.
You’ll be asked to say and spell your name and birth date many times. This is for your safety. People with the same or a similar name may be having surgery on the same day.
Get dressed for surgery
When it’s time to change for surgery, you’ll get a hospital gown, robe, and nonskid socks to wear.
Meet with a nurse
You’ll meet with a nurse before surgery. Tell them the dose of any medications you took after midnight (including prescription and over-the-counter medications, patches, and creams) and the time you took them.
Your nurse may place an intravenous (IV) line in one of your veins, usually in your arm or hand. If your nurse doesn’t place the IV, your anesthesiologist will do it in the operating room.
Meet with an anesthesiologist
You’ll also meet with an anesthesiologist before surgery. They will:
- Review your medical history with you.
- Ask you if you’ve had any problems with anesthesia in the past, including nausea or pain.
- Talk with you about your comfort and safety during your surgery.
- Talk with you about the kind of anesthesia you’ll get.
- Answer your questions about your anesthesia.
Get ready for your surgery
When it’s time for your surgery, you’ll need to remove your hearing aids, dentures, prosthetic device(s), wig, and religious articles, if you have them.
You’ll either walk into the operating room or be taken in on a stretcher. A member of the operating room team will help you onto the operating bed. Compression boots will be placed on your lower legs. These gently inflate and deflate to help blood flow in your legs.
Once you’re comfortable, your anesthesiologist will give you anesthesia through your IV line and you’ll fall asleep. You’ll also get fluids through your IV line during and after your surgery.Back to top
After Your Surgery
The information in this section will tell you what to expect after your surgery, both during your hospital stay and after you leave the hospital. You’ll learn how to safely recover from your surgery.
Write down your questions and be sure to ask your healthcare provider.
What to expect
When you wake up after your surgery, you’ll be taken to the Post Anesthesia Recovery Unit (PACU). You’ll stay in the PACU overnight so your nurses can closely monitor your flap for 12 hours after your surgery.
You may not be able to open your mouth because of the rubber bands. You won’t able to talk because a tracheostomy tube will be in your windpipe. Your nurses will ask you “yes” or “no” questions about how you feel. You’ll be given an iPad to help you answer these questions. A dry erase board will also be available for you to write down what you need.
You’ll have tubes, drains, catheters (thin, flexible tubes), and other medical devices, including:
- A humidifier collar placed over your tracheostomy tube. It will provide moist air to your lungs.
- An IV line through which you’ll receive fluids, antibiotics, pain medication, and anticoagulants to prevent blood clots.
- A urinary (Foley®) catheter to drain urine from your bladder. It will be removed 2 or 3 days after your surgery.
- Drains (small tubes) in your neck and your donor site to allow fluid to drain. They are removed when the drainage is less than 1 ounce in 24 hours.
- A feeding tube that goes through your nose into your stomach. This is called a nasogastric (NG) tube. You’ll get high-protein liquid feedings and some of your medications through this tube. You won’t be able to eat and drink until the swelling from the surgery goes down.
- A cast, splint, sling, or wound VAC (a special dressing that applies suction to your wound to improve healing) may be placed on the donor site. It will be removed 5 to 7 days after your surgery. If you have a cast, splint, or sling, a dressing will be placed underneath it.
- Compression boots on 1 or both legs to help circulate blood to prevent blood clots. If your donor site was on one of your legs, that leg won’t have a boot on it.
For the first week after your surgery, your doctors and nurses will monitor the blood supply to your jaw and nearby tissue. They’ll use a machine called a Doppler®. It’s noisy, but painless. It will be used every hour for the first 2 days after your surgery. After 2 days, your doctor will decide how often the Doppler will be used. Your doctor and nurse will check that the flap feels warm to touch and appears similar in color to your surrounding skin.
It’s very important to avoid pressure to your newly reconstructed jaw. You won’t be able to use a pillow while in the hospital.
Your nurses and nursing assistants will care for your drains, tubes, and tracheostomy. As you start to feel better, they’ll teach you how to do some of this care yourself.
Suctioning the tracheostomy tube
When you cough and breathe deeply, mucus from your lungs and the back of your throat will come through your tracheostomy tube. This mucus will have to be suctioned. Your nurse will do this frequently during the first few days after your surgery. They’ll then teach you how to do it yourself. For more information, please read Caring for Your Tracheostomy.
Once the swelling has decreased, you’ll have less mucus and the opening of the tracheostomy tube will be capped so you can breathe through your nose. If you’re able to breathe normally and cough up mucus comfortably with the tracheostomy tube capped, it will be removed. If you go home with the tracheostomy tube in place, your nurse will teach you how to care for it. We’ll order a portable suctioning machine for you.
Nasogastric (NG) tube feedings
Your nurse will give you tube feedings through your NG tube for the first 1 to 2 weeks. Once the swelling starts to go down, your NG tube will be removed and you’ll be given clear liquids to drink and then soft foods to eat. How quickly your diet progresses will depend on your healing.
Caring for your donor site
The leg is the donor site that’s most often used for jaw reconstructions. If your jaw is being rebuilt using tissue from a different donor site, your nurse will tell you how to care for it.
You’ll stay in bed for the first 2 days after your surgery to help your leg heal. After 2 days, you can get out of bed and sit in a chair with your leg raised. It’s important to keep your leg raised as much as possible for the first 3 weeks. This will help with the swelling and promote healing. Your doctor will tell you when you can start walking again. You’ll need to use a walker at first, but you’ll be able to walk on your own over time.
During your hospital stay, your nurse will tell you how to care for your leg and skin graft, if you have one. When it’s time to go home, they’ll give you specific instructions if you still need them.
Irrigating your mouth
Starting 5 days after your surgery, or as soon as your rubber bands are removed, your nurse will start irrigating (wetting) your mouth with salt water and baking soda. This helps keep your mouth clean and moist.
You’ll keep irrigating your mouth after you leave the hospital. Do this 3 to 4 times a day, in the morning, after meals, and at bedtime. Your nurse will give you an irrigation kit to take home with you.
Trismus is a condition in which someone has difficulty opening their mouth. It can develop after surgery or radiation therapy. It’s caused by soft tissue scarring or changes in the muscles around the jaw. You must do jaw exercises to prevent trismus. As soon as you’re ready, your healthcare provider will tell you how often to do them. For more information, read the resource Preventing Trismus.
Following a puréed diet
Most people will need to follow a puréed diet after they are discharged. This means foods have to be put through a blender or food processor. Your clinical dietitian nutritionist will go over this diet with you. Your diet will progress as healing takes place. For more information, read Eating Guide for Puréed and Mechanical Soft Diets.
Commonly asked questions
How long will I be in the hospital?
The length of time you’re in hospital depends on the extent of the surgery and how quickly you recover. On average, most people stay for 10 to 14 days.
Will I have pain?
You’ll have some pain after your surgery. Your healthcare providers will ask you about your pain often and give you medication as needed. If your pain isn’t relieved, tell one of your healthcare providers. Your healthcare provider will give you a prescription for pain medication before you leave the hospital.
Will I have pain when I am home?
The length of time each person has pain or discomfort varies.
Follow the guidelines below to help manage your pain at home.
- Take your medications as directed and as needed.
- Call your healthcare provider if the medication prescribed for you doesn’t ease your pain.
- Don’t drive or drink alcohol while you’re taking prescription pain medication. Some prescription pain medications can make you drowsy. Alcohol can make the drowsiness worse.
- As your incision heals, you’ll have less pain and need less pain medication. An over-the-counter pain reliever such as acetaminophen (Tylenol®) or ibuprofen (Advil®) will ease aches and discomfort.
- Follow your healthcare provider’s instructions for stopping your prescription pain medication.
- Don’t take more of any medication than the amount directed on the label or as instructed by your healthcare provider.
- Read the labels on all the medications you’re taking, especially if you’re taking acetaminophen. Acetaminophen is an ingredient in many over-the-counter and prescription medications. But, taking too much can harm your liver. Don’t take more than 1 medication that contains acetaminophen without talking with a member of your healthcare team.
- Pain medication should help you resume your normal activities. Take enough medication to do your activities and exercises comfortably. It’s normal for your pain to increase a little as you start to be more active.
- Keep track of when you take your pain medication. It works best 30 to 45 minutes after you take it. Taking it when you first have pain is better than waiting for the pain to get worse.
How can I prevent constipation?
Pain medication may cause constipation, but there are steps you can take to prevent it, including exercising if you can. Walking is an excellent form of exercise. Drink plenty of water. If these methods don’t help, talk with your healthcare provider. They may recommend over-the-counter or prescription medication.
When will my stitches be removed?
If you have stitches inside of your mouth, they’ll dissolve on their own and don’t need to be removed.
Your healthcare provider will remove the stitches in your face and neck approximately 2 weeks after your surgery. If you have had radiation therapy to your face or neck, the stitches may stay in place for 3 to 4 weeks.
How do I care for my incisions?
- Don’t apply direct heat or cold to the incisions. They may be numb and you can easily burn yourself.
- Don’t use hot water bottles or heating pads. You should also avoid saunas and steam rooms.
- Don’t shave over your incisions while your stitches are in place. If you shave your face or neck, use an electric shaver.
- Don’t use perfume, cologne, after-shave, or perfumed moisturizers until your incisions are completely healed.
- Avoid sun exposure. Once your head and neck surgeon determines your incisions are completely healed, you may use a PABA-free sunscreen, with an SPF of 30 or higher, on your incisions.
When can I shower?
Your healthcare provider will give you instructions on when you can shower.
When can I swim?
You can swim when you’ve been told your incisions are completely healed. Avoid hot tubs, baths and swimming pools until then.
When can I resume my normal activities?
Your healthcare provider will tell you when you can resume normal activities. This depends on the extent of your surgery and how quickly you recover.
When is it safe for me to drive?
Your healthcare provider will tell you when you may resume driving. This will depend on the extent of your surgery and how quickly you recover.
When can I exercise?
Don’t do strenuous exercise or lift any objects heavier than 5 pounds (2.3 kilograms) for 6 weeks. Talk with your healthcare provider before resuming activities such as lifting and exercise.
When can I resume sexual activity?
Your healthcare provider will tell you when you can resume sexual activity.
What type of follow-up care will I receive after I leave the hospital?
Both your head and neck surgeon and your plastic surgeon will need to see you after discharge. Call each surgeon’s office to schedule your follow-up appointment. Write down any questions you have and bring them with you.
When will I get my test results?
Your test results should be available 10 to 14 days after surgery. Your healthcare provider will discuss them with you at your first follow-up appointment after your surgery.
How can I cope with my feelings?
After surgery for a serious illness, you may have new and upsetting feelings. Many people say they felt weepy, sad, worried, nervous, irritable, or angry at one time or another. You may find you can’t control some of these feelings. If this happens, it’s a good idea to seek emotional support.
The first step in coping is to talk about how you feel. Family and friends can help. Your healthcare providers can reassure, support, and guide you. It’s always a good idea to let us know how you, your family, and your friends are feeling emotionally. Many resources are available to patients and their families. Whether you’re in the hospital or at home, we’re here to help you and your family and friends handle the emotional aspects of your illness.
What if I have other questions?
If you have any questions or concerns, talk with your healthcare provider. You can reach them Monday through Friday from 9:00 am to 5:00 pm.
After 5:00 pm, during the weekend, and on holidays, call 212-639-2000 and ask for the person on call for your healthcare provider.Back to top
When to Contact Your Healthcare Provider
Contact your healthcare provider if you have:
- A fever of 100.4 °F (38 °C) or higher
- Increased discomfort, redness, or both around your incision line
- Skin around your incision line that’s hot to the touch
- Drainage or accumulation of fluid from your incision site
- Shortness of breath
- New or increased swelling around your incision
This section contains a list of support services that may help you get ready for your surgery and recover safely.
Write down your questions and be sure to ask your healthcare provider.
MSK support services
Call if you have questions about your hospital admission, including requesting a private room.
Call if you have questions about anesthesia.
Blood Donor Room
Call for more information if you’re interested in donating blood or platelets.
Bobst International Center
MSK welcomes patients from around the world. If you’re an international patient, call for help arranging your care.
At MSK, our chaplains are available to listen, help support family members, pray, contact community clergy or faith groups, or simply be a comforting companion and a spiritual presence. Anyone can request spiritual support, regardless of formal religious affiliation. The interfaith chapel is located near the main lobby of Memorial Hospital and is open 24 hours a day. If you have an emergency, please call the hospital operator and ask for the chaplain on call.
Many people find that counseling helps them. We provide counseling for individuals, couples, families, and groups, as well as medications to help if you feel anxious or depressed. To make an appointment, ask your healthcare provider for a referral or call the number above.
Food Pantry Program
The food pantry program provides food to people in need during their cancer treatment. For more information, talk with your healthcare provider or call the number above.
Integrative Medicine Service
Integrative Medicine Service offers many services to complement (go along with) traditional medical care, including music therapy, mind/body therapies, dance and movement therapy, yoga, and touch therapy.
You can visit our library website or speak with the library reference staff to find more information about your specific cancer type. You can also visit LibGuides on MSK’s library website at libguides.mskcc.org.
Patient and Caregiver Education
Visit the Patient and Caregiver Education website to search our virtual library. There, you can find written educational resources, videos, and online programs.
Patient and Caregiver Peer Support Program
You may find it comforting to speak with someone who has been through a treatment similar to yours. You can talk with a former MSK patient or caregiver through our Patient and Caregiver Peer Support Program. These conversations are confidential. They may take place in person or over the phone.
Call if you have questions about preauthorization with your insurance company. This is also called preapproval.
Patient Representative Office
Call if you have questions about the Health Care Proxy form or if you have concerns about your care.
Perioperative Nurse Liaison
Call if you have questions about MSK releasing any information while you’re having surgery.
Private Duty Nursing Office
You may request private nurses or companions. Call for more information.
Resources for Life After Cancer (RLAC) Program
At MSK, care doesn’t end after active treatment. The RLAC Program is for patients and their families who have finished treatment. This program has many services, including seminars, workshops, support groups, counseling on life after treatment, and help with insurance and employment issues.
Sexual Health Programs
Cancer and cancer treatments can have an impact on your sexual health. MSK’s Sexual Health Programs can help you take action and address sexual health issues before, during, or after your treatment.
- Our Female Sexual Medicine and Women’s Health Program helps women who are dealing with cancer-related sexual health challenges, including premature menopause and fertility issues. For more information, or to make an appointment, call 646-888-5076.
- Our Male Sexual and Reproductive Medicine Program helps men who are dealing with cancer-related sexual health challenges, including erectile dysfunction. For more information, or to make an appointment, call 646-888-6024.
Social workers help patients, family, and friends deal with issues that are common for cancer patients. They provide individual counseling and support groups throughout the course of treatment, and can help you communicate with children and other family members. Our social workers can also help refer you to community agencies and programs, as well as financial resources if you’re eligible.
Tobacco Treatment Program
If you want to quit smoking, MSK has specialists who can help. Call for more information.
MSK’s Virtual Programs offer online education and support for patients and caregivers, even when you can’t come to MSK in person. Through live, interactive sessions, you can learn about your diagnosis, what to expect during treatment, and how to prepare for the various stages of your cancer care. Sessions are confidential, free, and led by expert clinical staff. If you’re interested in joining a Virtual Program, visit our website at www.mskcc.org/vp for more information.
External support services
In New York City, the MTA offers a shared ride, door-to-door service for people with disabilities who can’t take the public bus or subway.
American Cancer Society (ACS)
Offers a variety of information and services, including Hope Lodge, a free place for patients and caregivers to stay during cancer treatment.
Cancer and Careers
A resource for education, tools, and events for employees with cancer.
275 Seventh Avenue (Between West 25th & 26th Streets)
New York, NY 10001
Provides counseling, support groups, educational workshops, publications, and financial assistance.
Cancer Support Community
Provides support and education to people affected by cancer.
A place where men, women, and children living with cancer find social and emotional support through networking, workshops, lectures, and social activities.
Offers financial assistance to pay for copayments during treatment. Patients must have medical insurance, meet the income criteria, and be prescribed medication that’s part of the Good Days formulary.
LGBT Cancer Project
Provides support and advocacy for the LGBT community, including online support groups and a database of LGBT-friendly clinical trials.
Provides reproductive information and support to cancer patients and survivors whose medical treatments have risks associated with infertility.
Look Good Feel Better Program
This program offers workshops to learn things you can do to help you feel better about your appearance. For more information or to sign up for a workshop, call the number above or visit the program’s website.
National Cancer Legal Services Network
Free cancer legal advocacy program.
National LGBT Cancer Network
Provides education, training, and advocacy for LGBT cancer survivors and those at risk.
Lists Patient Assistance Programs for brand and generic name medications.
Provides prescription benefits to eligible employees and retirees of public sector employers in New York State.
Patient Advocate Foundation
Provides access to care, financial assistance, insurance assistance, job retention assistance, and access to the national underinsured resource directory.
This section contains the educational resources that were referred to throughout this guide. These resources will help you get ready for your surgery and recover safely after surgery.
Write down your questions and be sure to ask your healthcare provider.
- Caring for Your Tracheostomy
- Common Medications Containing Aspirin, Other Nonsteroidal Anti-inflammatory Drugs (NSAIDs), or Vitamin E
- Eating Guide for Puréed and Mechanical Soft Diets
- Herbal Remedies and Cancer Treatment
- Preventing Trismus